Things look great for Braden right now. His femoral ball is definitely in the collapsing mushroom shape, but the steroids from his surgery in September seem to be doing the trick to keep him pain-free and not limping for now. He's normally a perky and easy-going boy, so it will be easy for us to recognize any decline as his hip starts to eventually disintegrate--for lack of a better description. He has a fancy problem called Legg-Perthy's disease, which is the dying of the bone inside the hip socket in children. It happens in adults too and is typically called Osteonecrosis--since it's the dying of a fully mature bone, at that point. But kids are a little tricky because they are pre-wired to grow bones, not kill bones. And for some reason unbeknownst to any earthly being, Braden was born with a compromised blood supply to his left hip and was diagnosed with this anomaly at the sweet age of three. His gait and leg positioning was classified as "on the extreme side of normal" then, with the promise that we'd just see what happens as he gets older and taller. We feel pretty fortunate that we've only had to start "treating" the disease this year--six years after the original diagnosis.
When Dr Tompkins went into the hip back in September, he said that he would have to have the exact same surgery on Braden that Nathan had last January. (Talk about having that sinking feeling going through you!) And he said that the odds of this happening in the same family from completely different causes was 1 in a million. Wow. Lucky us! So somewhere between the age of 14-15 years old, he'll be split open from mid thigh to high waist, and have the femoral ball ground down and repositioned inside the socket. Or cut off, rounded and repositioned with plates and screws. It's a pretty grueling surgery (Nathan's was 7+hours), and will include several months of recovering and physical therapy for sure. Oh, the things we look forward to.
















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